ADPKD Community

You’re never alone. Refer to these additional resources to help you get introduced, integrated and involved.

Meet others at an ADPKD event near you!

PKD Awareness Day

Spread the word, raise your voice every September 4th!

Learn more

March

National Kidney Month
Raise awareness of kidney disease

Want to participate?

Find out more about upcoming events taking place near you!

Get involved

Forums and Associations

Find other patients online

PKD Foundation of Canada

The PKD Foundation of Canada leads the national fight against polycystic kidney disease (PKD) through research programs, education, awareness and support to help discover vital treatments for PKD and improve the lives of all those it affects.

GO

The Kidney Foundation of Canada

The Kidney Foundation of Canada is people working together for a common cause. We are volunteers, individuals living with kidney disease, donors, and staff members — from all walks of life, all across Canada.

GO

PKD Foundation (USA)

We are dedicated to finding treatments and a cure for polycystic kidney disease (PKD) to improve the lives of all it affects.

GO

PKD Charity

PKD Charity is a UK-based initiative focused on improving the lives of those affected by PKD.

GO

Kidney Connect

The Support Network of the Kidney Foundation of Canada At Kidney Connect, you can get in touch with other kidney patients, create a virtual support group, participate in forums, create an event and even start your own blog.

GO

Poll: How have you reached out to the ADPKD community?

Loading ... Loading ...

ORIJIN® Patient Support Program Newsletter

Want to be informed about the latest videos, quizzes and apps?

Consult your doctor with any questions about your disease and your treatment, or to find out if the advice on this website is right for you. For more information on Pr JINARC® (tolvaptan), call toll free:

1-844-2JINARC

(1-844-254-6272)

Over time, cysts (sacs filled with fluid) develop on your kidneys and may get bigger. As cysts continue to grow in number and size, your kidneys get larger. Over time, you may experience symptoms of disease progression.