Talking About
ADPKD

Open up, be active, be vocal, be heard!
Living with ADPKD
Opening Up
Nutrition
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Reach out to others

Surrounding yourself with loved ones is the best way to support yourself. It doesn’t necessarily have to be family members, it could be your closest friends, colleagues or even your healthcare team. The key is communication.

Family

Because it’s hereditary.

If you have ADPKD, chances are that someone in your family has it. ADPKD is a genetic disease, as such there is a possibility that you inherited the disease from one of your parents. If you want to better understand the genetics of ADPKD, you can always find genetics counsellors online or you can ask your doctor to refer you to one in your area.

Even within the same family, ADPKD can progress in different ways so don’t hesitate to talk to your family members. Their experience may help you during your treatment or your experience may help others.

Friends

Because that’s what friends are for.

If your family is unavailable or pressed for time, you can always reach out to your friends. They can offer you support and listen to what you have to say. It’s important to remember that they may not understand your condition, so you may have to explain your situation to them.

Children

Because they need to know.

Do you need to talk to your children about ADPKD? If so, here are some tips that may help:
– Cater to your child, you know what information they need to know
– Share your experiences and knowledge
– Provide simple and honest answers
– Allow them to process the information
– Explain the hereditary nature of the condition
Looking for more information? Refer to the following article to help you navigate through your conversations with your children.

Employers

Because it’s your choice.

The decision to tell your employer about your diagnosis is personal. Before informing your employer, consider how your condition may impact your job. Would you need special accommodations? Would you need a flexible schedule to make appointments and take time off for procedures?

Appointment Preparation

Need to talk to your doctor? Not sure what questions to ask or what to expect in your appointment?

View the Appointment Preparation Tool to help get you prepared.
Access the tool

Featured Apps

Please note that some fees may apply with the use of these apps.

Hope, Inspiration and Positivity

Virtual Hope Box (Free)

Happify (Free)

I-Positivity (Free)

Fabulous: Motivate Me! Relax, Meditate, Sleep

Poll: Who have you told about your ADPKD?

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Consult your doctor with any questions about your disease and your treatment, or to find out if the advice on this website is right for you. For more information on Pr JINARC® (tolvaptan), call toll free:

1-844-2JINARC

(1-844-254-6272)

All trademarks identified by a ® or a ™
are protected trademarks (registered or unregistered) of their owners or licensors. For more information, please visit www.otsukacanadatm-mc.ca.

© Otsuka Canada Pharmaceutical Inc. All rights reserved.

OCPI-JIN-00187E

All trademarks identified by a ® or a ™
are protected trademarks (registered or unregistered) of their owners or licensors. For more information, please visit www.otsukacanadatm-mc.ca.

© Otsuka Canada Pharmaceutical Inc. All rights reserved.

OCPI-JIN-00188E

Over time, cysts (sacs filled with fluid) develop on your kidneys and may get bigger. As cysts continue to grow in number and size, your kidneys get larger. Over time, you may experience symptoms of disease progression.